Got blood work done this morning. The good news is my platelets have come up to 33k. I think that means my body is making platelets again which is awesome! But my white blood cells are down to 1k and neutrophils are down to 0.3k. So my immune system is very compromised right now. I got another shot of filgrastim to boost white cell production and will get another shot of that tomorrow. We’re hoping to do some sort of treatment Monday. Not sure if it’ll be chemo and immunotherapy or both again. Probably won’t be both. We’ll see.
I reached out to Ohio State University’s cancer center for a second opinion this morning too. They seem to be the most expert clinic on HCL so I figured it wouldn’t hurt to make sure my care is in line with current research since what I have is so rare.